National Resource Center for Reaching Victims Logo Anti-Ableist Glossary of Disability Terms By: Sara M. Acevedo, PhD. Project Synopsis This project originated in the United States as a joint effort between the Vera Institute of Justice, the National Resource Center (NRC) and other allied organizations and their partner community of translators1. In response to the needs and priorities identified by the communities themselves, the partner organizations adopted a comprehensive action strategy focused on the joint development of initiatives seeking equality and justice for families and whole communities impacted by violence. These initiatives involve elements of research, recommendations on policy and direct action in order to help strengthen the affected groups which, owing to their social, economic, political, ethnic and cultural circumstances, find themselves in a situation of extreme vulnerability. In summary, the primary and overall aim of this project is to guarantee equality, sustainability and quality in these alliances by strengthening the communicative ties between service provider organizations and the disabled persons they support. Table of Contents Project Synopsis ................................................................ 1 Outline of the Glossary ...................................................... 5 Political and Cultural Framework ....................................... 5 Scope and Approach .......................................................... 6 1. Aceptación (English: acceptance): ............................... 8 2. Autodeterminación (English: self-determination): ....... 9 3.Ayudas y Servicios Auxiliares (English: auxiliary aids): ...................................................................................... 10 4. Capacitismo (English: Ableism): ................................ 11 5. Ceguera (English: Blindness): .................................... 12 6.Centro de Vida Independiente (English: IndependentLiving Center) ................................................................ 13 7.Comunicación Aumentativa y Alternativa (English: Augmentative and Alternative Communication): ........... 14 8. Daltonismo (English: Color Blindness): ...................... 15 9. Demencia (English Dementia): .................................. 16 10.Discapacidad Intelectual (English: IntellectualDisability): ..................................................................... 17 11.Discapacidad de Desarrollo (English: DevelopmentalDisability) ...................................................................... 18 12. Dislexia (English: Dyslexia): .................................... 19 13.Directrices Sobre Interacciones y Lenguaje (English: Disability Etiquette): ...................................................... 19 14. Interdependencia (English: Interdependence): ....... 22 15.Justicia por la Discapacidad (English: DisabilityJustice): ......................................................................... 22 16. Lector de Pantalla (English: Screen reader) ............. 23 17.Lesión Cerebral Traumática (LCT) (English: TraumaticBrain Injury (TBI)): ....................................................... 24 18.Movimiento de Derechos de los Discapacitados(English: Disability Rights Movement) ........................... 25 19. Disability Models: ..................................................... 26 Charity Disability Model................................................... 26 Modelo Religioso o Moral de la Discapacidad (English: Religious/Moral Model of Disability): ................................. 27 Modelo Biomédico de la Discapacidad (English: Biomedical Model of Disability): ....................................................... 28 Modelo Social de la Discapacidad (English: Social Model of Disability): .................................................................... 29 Modelo Cultural de la Discapacidad (English: Cultural Model of Disability): .................................................................... 30 20. Nada Sobre Nosotros Sin Nosotros (English: Nothing About Us Without Us): ................................................... 30 21. Neurodiversidad (English: Neurodiversity): ............. 31 References ..................................................................... 32 Castro-Girona Martinez, J.L. (2018). El Artículo 12 de la convención de los derechos de las personas con discapacidad. Madrid: Editorial Universitaria Ramón Areces. ............................................................................. 33 Torres Jiménez, R.M. (1991). Reflexiones sobre religiosidad popular, el concepto de caridad en la espiritualidad laica, del amor a Dios al amor a los pobres, del mundo rural al humanismo. Cuadernos de estudios manchegos, 36, 154-184. .............................................. 37 Outline of the Glossary The purposes of this glossary are as follows: •Provide a practical instrument that will guarantee the qualityof the services provided and satisfy the needs of Spanish- speaking disabled persons who have survived various typesof violence. •Develop a language guide that primarily serves as a tool toraise social awareness regarding systematic discriminationagainst disabled persons and their related identities. •Transform ableist beliefs and attitudes (and their links toother forms of discrimination), which are reflected in thecommon use of language and everyday communicativesituations. Political and Cultural Framework The thematic content of this glossary is inspired by the practical framework for Disability Justice, whose principals are rooted in a comprehensive understanding of the processes of systemic oppression, capitalist development and the intrinsic links between ableism, racism, classism, sexism, speciesism, homophobia, transphobia, Islamophobia, fatphobia, and anti-immigrant sentiment, along with all other forms of material and cultural discrimination and alienation (see glossary p. 4). It is important to note that, despite the fact that social transformation requires an active and constant focus on the processes of systemic discrimination, the Disability Justice movement emphasizes the importance of the historical and contemporary processes of political survival and resistance. Some of the pillars of this movement are transversal organization and collaboration with other social movements and the praxis of interdependence (see glossary p. 4), access as a form of collective liberation and art as an aesthetic, political and pedagogical tool (Patty Berne, 2015, 2017). The leading project in this area is the theater company Sins Invalid. This company is made up of a group of people who are disabled, of color, gay and do not identify with their birth gender, all of whom understand and live with disability as a multidimensional experience: 1 1 See Skin, Tooth, and Bone The Basis of Movement is Our People: A Disability Justice Primer (Sins Invalid, 2017). For more information visit this link: https://www.flipcause.com/secure/reward/OTMxNQ • As an important part of their bodily and material existence • As a social construct • As an alternative, creative and adaptive way of life • As a political and cultural identity within a social context that is hostile to bodymind differences. Scope and Approach Given that the sponsor organizations for this project work within a United States framework, and that their aim is to serve local Spanish-speaking consumers, this glossary reflects linguistic, political and cultural positions that are especially pertinent in that context. This means that, although they are translated by a person whose native language is Spanish, many of the terms included here have local meanings and nuances that don’t always make sense beyond this context. Another element to take into account is that this project is authored from a subjective point of view that reflects the linguistic-cultural perspective of the writer, her intellectual formation, professional environment and political orientation with regard to disability.2 That being said, it is necessary to clarify the distinctions and variations in the terminology describing disability in the United States and Spanish-speaking countries on the continent of America, not just in terms of semantics, but history, culture and politics. For this reason, without a rigorous approach to their use in Latin America, it would be inaccurate and ahistorical to apply the label of ableist to terminology that follows 2 In this glossary, in accordance with her intellectual formation and sociocultural and political formation regarding disability, the translator uses the language of identity first - disabled person - except in certain cases (see glossary p. 12). There are different uses, among them the terms relating to the person, firstly, and its variants: Disabled person, person in a situation of disability, person with functional diversity. different norms than experts in the subject from the United States. Although an exhaustive analysis of these linguistic variations and distinctions is beyond the scope of this project, it is important to clarify this in order to avoid contributing, even if in a minor way, to the reproduction of linguistic neocolonialism and the imposition of terms that do not agree with the historical development, cultural context and daily lives of Latin American societies. In summary, the approach and scope of this project encourages the consideration of language as a practical instrument and a communicative tool, among many other reflections, without forgetting its role as a sociocultural institution that is framed by state policy, hegemonic structures and the shaping of values having to do with the identity in each nation. Notwithstanding the weight of these ideological and epistemological fundamentals, language is also deployed as a political weapon and one of political liberation from authoritarian imposition. 1. Aceptación (English: acceptance): An active concept describing the decision of a person or a social collective to approve and acknowledge the value of a fact, action, thought, identity, state of being or circumstance, either in the past or the present. With regard to disabled persons, acceptance Acevedo9 carries with it the recognition of theintrinsic natureof their valueas human beings and the full affirmationof theircivil rights andas citizens. These include the right tolive a lifeof dignity, free of discrimination,exclusion, rejection andviolence, with access to all thematerial andinterpersonal elements that aid,support andsustain their satisfactoryparticipation in the community. Example: •The United States, Canada and some European countrieshavenamed April as Autism Awareness Month. For themajorityof autistic communities, the concept of acceptancemeans something different than awareness.While theawareness-raising campaigns areled mostlyby health professionals who believe thatautismis a developmentaldisorder that needs to be cured, acceptancecampaigns areledbyactivists who areactuallyautistic.Theseactivists takeelements from the social andcultural model to promote thevalueofself-determination,self-management, bodymindautonomy andthe richness oftheautistic culture (ASAN, 2012). 2.Autodeterminación (English: self- determination): The active process whereby people establish their right to act as autonomous agents andto make decisions for Acevedo10 themselves regarding all aspects of their lives. In manysocieties, disabled people suffer the effects ofoppressiveideologies thatassumetheir inherentinferiorityandencourage the practices that affirm this.Among these arethose practicesthat arebasedon a paradigm that assumes deficiency, childishness, aninability to make decisionsandabsenceofautonomyregardingtheir body-mind, alongwith a legalincapacity to exercise their rights as citizens. In thehistorical andgeographicalcontext of the UnitedStates, Canada, the United Kingdom and Australia, for example, disabled activists and their political sympathizers havestruggled against the domination of ableist societies andestablished therights to autonomy andself-determination byappealingto thelaw,holdingpeacefuldemonstrations, student protests, directaction and blockades,sit-ins in government offices, education, art andso on. 3.Ayudas y Servicios Auxiliares (English: auxiliaryaids): According to the1990Americans with Disabilities Act (ADA) the blind, deafandpersons with other communicationdisabilities are fully entitled to receive enhancements to improve the effectiveness of their interaction,with other people that arewith or withoutdisabilities andwith their environment, as well as fair access to active, satisfactory Acevedo11 participation in allspheres of everydaylife. In order to ensurecompliance with theselegalprovisions regardingaccess,thelawrequires that state institutions and bodies and establishments andsites designed for useby the public as educationalandrecreational centers or for rentalor asserviceproviders possess the technologyandother adaptiveresources necessary to ensure that people with communication disabilities obtain maximum enjoyment fromtheir activities. These auxiliary aids andservices includesign language interpreters, real-time transcription services, audio recordings,braille materials andscreens, secondaudio programs, open captioning andsubtitles. 4.Capacitismo (English: Ableism): A series ofideologies, systems, institutionsand economic andsocioculturalpractices whose oppressive natureis basedon thearbitrary belief that disabled bodies are essentially inferior to those consideredto be“normal”. Usesineverydaylanguage: a.Ableismis both an ideology and a dominant practicein Anglo-American andEuropean societies. b.This writer’s observations arebasedon ableistideologies. 5. Ceguera (English: Blindness): A physical and sensory condition referring to the lack or lessening of sight. 2.1 Ciego (English: Blind) Ciego: Spanish for a blind man Ciega: Spanish for a blind woman Ciegue: 3 Neutral term for a blind person 3 Some Spanish-speaking countries have begun to adopt the use of the vowel “e” to create a neutral linguistic gender in order to highlight and transform the primacy of the binary social construction of gender that excludes gay and non-gender-conforming people. For more information, go to these links: http://agenciapresentes.org/2018/09/18/a-quien-incluye-el- lenguaje-inclusivo/ https://www.change.org/p/real-academia- espa%C3%B1ola-crear-un-pronombre-adecuado-para-el-g%C3%A9nero- neutro-en-espa%C3%B1ol-2 Uses: • Blindness is one of the physical-sensory conditions that commonly figures in classic works of literature. For example, the story of Lazarillo de Tormes, which inspired an entire literary genre in the sixteenth century. • On of the most common beliefs, in different social contexts, is that the blind need constant, overprotective help. Those who know the subject, especially the blind or visually impaired, argue the opposite and demonstrate this in their daily lives. Acevedo13 •Centro de Vida Independiente (English: IndependentLiving Center) 6.Centro de Vida Independiente (English: Independent Living Center) A not-for-profitcommunityorganization createdbyandfor disabled persons. In the United States, these centers operate on a nationallevel,providing informational and educationalservices regarding the mostbasic aspects of everydaylife, such as equalityofrights, the legalprotectionsspecifiedintheADA, adjustments designed for access to education,health, housing, employment and transport, as well as practical knowledge of thediverseset of assets,instruments, tools and technologies thatfacilitate full participation in thecommunities they belongto andin society in general. In addition, the centers also offer opportunities for collective organization, joint self-representation, mutualsupport and activism.4 4The story of theIndependent Living Movement began in the United Statesin the 1960s. Ed Roberts, a disabledstudent at Berkeley,California at the time, is recognized as the Father of theIndependent Living Movement. Before entering college, Ed had a confrontationwith the Berkeleyboard of directors,which had refused to admit him on the grounds that his respirator(“iron lung”) was too big for the university dorms. Ed and a group ofotherdisabledstudents mobilized to fight against the architectural and social barriers preventing them from exercising theirright to an education and participation in thecommunity. From this, and many other formsof jointorganization, came the Independent Living Centerin 1972. For more information, visit this link : https://www.independentliving.org/docs6/alonso2003.pdf 5 For more information, visit this link: http://www.ceapat.es/InterPresent2/groups/imserso/documents/binario/comunicacinaumentativayalterna.pdf 7. Comunicación Aumentativa y Alternativa (English: Augmentative and Alternative Communication): A set of support devices, systems and technologies designed to facilitate quality of access and full, satisfactory communication exchanges between persons with different communicative capacities and their family, community, educational or personal-relationship environments. The word “augmentative” here refers to support systems that complement spoken language, while the word “alternative” applies to the support systems that substitute spoken language. 5 Examples: • Manual or electronic boards with graphic or electronic symbols such as photos, letters, drawings and gestures that include body language and signing. • Electronic devices with integrated voice assistant applications. Depending on the adaptive needs of the user, this support technology offers different access Acevedo15 options,such as touch screens,eye-trackingscreens andswitches activated by moving different parts ofthebody, such as the knee, head, etc.,thus helpingtheuser to move through the contents on thescreen. Uses: •Access to alternative and augmentative devicesenhances thequalityoflife of people with communication disabilities. 8.Daltonismo (English: Color Blindness): A genetic and congenitaldisorder also widelyknown as dyschromatopsia. There are some types ofdyschromatopsiathat are not genetic which result from lesions to the eye. Color blindness involves various levels ofdifficulty inperceivingor distinguishing colors; according to experts in the subject there at least four types:6 •Achromatic: someonewho is only ableto recognizeblack, white and gray tones. •Monochromatic:someone who is onlyable to recognizeonecolor. 6To learn more, visit this link: https://latam.historyplay.tv/hoy-en-la- historia/fue-descubierto-el-daltonismo Acevedo16 •Dichromatic: someonewho has difficulty distinguishingbetween the colorsred and green or blue and yellow; aless common problem. •Trichromatic: someonewho confuses some colors with others. Uses: •Color blindness is hereditary 9.Demencia (EnglishDementia): A general term that embraces aset of mental disabilities commonlyrelated to ageing. Dementiainvolves thealteration and the deterioration of somecognitive functions, such as memory, language and communication, the capacityto make decisions andorientation. Dementia does notalwaysoccurduringlater life and there are various types: •Alzheimer’s: a commontype ofprogressive dementiathat affects firstthe memory and orientation and then other cognitive functions such as communication andlanguage. •Vasculardementia:occurs after oneor severalcardiovascular events;it affects the memory, orientation anddecision-makingabilities,amongothers. •HIV-associateddementia or AIDS dementia complex: The resultof neurallesions caused by the virus;it can Acevedo17 cause apathy and affect concentration and communication andlanguage, among other issues.7 Uses: •Dementia does not always occur duringlater life 10.Discapacidad Intelectual (English: Intellectual Disability): A medicallabelapplied to a person whose intellectual capacity is seen as inferior to that of most people considered to be “normal”,and whose experienceofthe world is limited byinternal andexternal factors that prevent them from respondingin a typical fashion to various situations involving communication,socialinteraction and cognitive tasks.8This 7For more information, visit these links: https://www.merckmanuals.com/es-us/professional/trastornos- neurol%C3%B3gicos/delirio-y-demencia/demencia-asociada-a-hiv, https://www.mayoclinic.org/es-es/diseases-conditions/vascular- dementia/symptoms-causes/syc-20378793, https://www.alz.org/alzheimer- demencia/que-es-la-enfermedad-de-alzheimer 8The current concept of normality has its roots in preconceptions from themodern era whosepostulates are based on the thoughtof philosophersconvinced of the sovereignty of reason and individuality, and whoseintellectual principles were rootedin the belief that there is a sole,exclusive and “superior” wayof being, existing, inhabiting and interpreting the world (Horkheimer & Adorno, 1994; PatiñoGarcía, 2015). This arbitrary convictionis backedup historically through aesthetic, anatomicaland functionallawsdictated by the capitalist system according to the concept oflaborproductivity and efficiency (Ferreira,2008; Oliver and Barnes, 2012). From an ideological and socioeconomic point of view, the arbitrary nature of these beliefs has unleashed a series of oppressive and discriminatory cultural and material practices that are visited upon people who are considered to fall outside the canon of “normality” (Foucault, 2002). clinical categorization refers to a group of specific numerical parameters established according to a set of standardized assessments that are collected during a process known as an Intelligence Quotient (IQ) measurement. Uses: • The organization entitled Self Advocates Becoming Empowered (SABE) was created by activists with intellectual and developmental disabilities in the United States. 11. Discapacidad de Desarrollo (English: Developmental Disability) A medical label applied to a person considered to fall outside the parameters of what is clinically known as “typical” in terms of development, and whose experience of the world is limited by internal and external factors that prevent them from responding to different situations in a typical fashion, including situations involving communication, cognition and learning and social and cultural components. These clinical- social parameters are established through a set of Acevedo19 descriptive andnumerical processes whose method ofassessmentis basedon a comparison of standardizedvariables. These variables aregenerallymeasured during the“developmental stage”. In Anglo-American societies, this periodis held to be the first 18 years oflife. Uses: •Autismis a developmentaldisability 12.Dislexia (English: Dyslexia): A neurologicallearningdisabilityof genetic origin involving various degrees of difficulty inlanguageacquisition,recognition of the written word andother graphic symbols, spelling, reading andwriting. Uses: •Dyslexicshave difficultydecoding graphic symbols such asletters and numbers. 13.Directrices Sobre Interacciones y Lenguaje (English: Disability Etiquette): Accordingto theconceptandpracticeofself-determination, disabled persons have the sameright as their non-disabledpeers to act as autonomous agents andmake decisions for themselves regarding every aspect of their lives.On thebasisof thisprinciple,various groups ofdisabledactivists Acevedo20 have established different,and at times contradictory, preferences on the useof language regardingdisability as well as the tone, content andnuances of their interactions with non-disabled persons. Although preferences varybetween thesegroups accordingto their historicalexperience and their affiliationswith differentpoliticalmovements focusedondisability, the most important aspect ofthis formoflinguistic andrelationalself-representation is that it isoriginated by and for disabled persons. It is important to underline that this communicational andrelationalprincipleconsists of adirectinvestigation ofthe personal preferencesof theinterlocutor.9 Examples: •Some people prefer what is known asFirst Person Language.Example:Maria hasa disability,Margarita has autism,Pedro has an intellectualdisability.10Some people prefer what is termed theirIdentity First 9For more information, go to the following links : https://adata.org/factsheet/ADANN-writing-esp, https://www.urmc.rochester.edu/MediaLibraries/URMCMedia/strong-center- developmental-disabilities/documents/language-matters_sp.pdf, https://igualdad.ine.mx/wp-content/uploads/2017/12/Protocolo- discapacidad.pdf 10Note:In the specific case ofactivistswith intellectual and developmentaldisabilities, there is a historical and political context behind the First PersonLanguage. One of the leading US organizations in the area ofself- representation is Self Advocates Becoming Empowered(SABE). Acevedo21 Language. Example:Antonio is disabled,Rosais autistic. •When communicating with adeaf or hearing-impaired person through a sign languageinterpreter, be sure to concentrate your intention on the person that you’redirectlyinteracting with rather than theinterpreter. •Do not touch any aids or auxiliary devices such as wheelchairs, walkingsticks or crutches withoutthepermission of the person who uses them; this is an essential partofshowing respectfor thatperson andtheir personalspace. •When referringto disabilityor aspecific disabledperson,avoid euphemisms andcondescending terms such as “persons with special needs”, “differently- abled”, “intellectually-challenged”, “able-disabled” or “an inspiration to others”. Clearly, there are differences in howlanguagecan beused. •When holding apublic event, make sure that the forumcomplies with the regulations on accessibilityas stipulated in thelegal provisionsregarding the right ofaccess andparticipation for disabledpersons.Besure, also, to offer advertising materials such as pamphlets with clear contactinformation and willingness to dealwith applications for access andprovide personalizedhelp when possible. 14. Interdependencia (English: Interdependence): Philosophical-practical principle involving an inter-subjective approach that establishes that relationships between all living beings, including those between human beings and other sentient or sensible beings, as well as among human beings themselves, are woven into their fundamental nature. Based on the ten principles of Disability Justice (Sins Invaid, 2015) and updating Kropotkin’s concepts of solidarity, cooperation and mutual aid (1902), disabled activists of color, gay, trans and non-gender identified, initiated everyday political-practical projects of collective resistance and liberation formed around interdependence (Mia Mingus, 2010). The vision of these activists focuses, then, on the conscious practice of this philosophy as a collective antidote to various types of violence, such as capitalist exploitation class conflict, heteronormative patriarchy, social discrimination, interpersonal aggression, mass incarceration, theft of indigenous lands, war, religious intolerance and the destruction of natural resources. 15. Justicia por la Discapacidad (English: Disability Justice): An analytical framework and base social movement oriented towards praxis, political resistance and collective liberation Acevedo23 developed by agroup of disabled leaders ofcolor,gay, trans andnon-genderidentified (Patty Berne, 2015). The ideological roots of this movement can be foundin Berkeley, California in the early 2000s in the feminist focus on intersectionality(Kimberlé Crenshaw, 1989).11In contrast with theemphasis on disability as a central and prevailing identityin thestruggle for the inalienable rights of thedisabled, Disability Justice involves a comprehensiveunderstandingof theprocesses of systematic oppression andthe intrinsic links between capitalism, racism,classism, sexism,homophobia, transphobia, Islamophobia,fatphobia, and anti-immigrant sentiment and otherformsof material and cultural discrimination and alienation. Disability Justice thus signifies an unprecedentedadvance in the struggle for self-management and autonomy in disabledcommunities that goes beyond the historical andgeographicalcontext of the US and theworld as a whole (Patty Berne, 2015; Sins Invalid, 2017). 16.Lector de Pantalla (English: Screen reader) Computer technology providingaccess and aid through theuseof voicesynthesizers to reproduceinformation and otherbasic functions of a computer in an alternative way. In 11For more information, visit thislink: https://afrofeminas.com/2019/01/24/interseccionalidad-definicion-historia- y-guia/ Acevedo24 addition to converting text into speech,screen readers also handle Braille. Thereare various types of screen readers with different functionalfeatures dependingon the user’s access needs. Uses: •Screenreaders facilitate variousalternative methods ofcommunication. 17.Lesión Cerebral Traumática (LCT) (English: Traumatic Brain Injury (TBI)): A brain lesion resulting from asudden,severe blow. TBIs are classified as mild, moderateor severe andcan be either focalor diffuse;thatis, to various parts of thebrain. TBI can havevarious clinicalconsequences andharmor impedevarious cognitive andbodily functions such as:memory, perception,self-perception,communication andspeaking, amongothers;anxiety,depression andisolation arealso common effects. TBI can resultin temporaryor chronic disabilities and,although in mostcases the disabilities causedby brain injury areinvisible, they can also be visibleas in the caseof:paralysis, paresis and strabismus. Thereare twoexternal typesof impact that cause TBI: •Closed brain injury: Theheadstrikes a hardobject or surface. Acevedo25 •Brain laceration:An object penetrates and fractures the skull,injuring the brain.12 Uses: •Automobile accidents are the main cause of TBI. 18.Movimiento de Derechos de los Discapacitados (English: Disability Rights Movement) In the UnitedStates, duringthemid-1950s there werevarious nationalprotests againstthe material exclusion andsystemic violation of the human rights of the mostvulnerable andmarginalized members of society. Among themostnotableoftheseprotests are those demanding equalityfor women and their equalparticipation in all aspects ofeveryday life and thestruggleled by AfricanAmericans, whotook to the streets en masseto endracialsegregation andgain fullaccess to their full civilrights and legal protections. This peak of social assertion in the 1960s also saw the birth of the politicalmovement led by disabled persons. Upuntilthispoint, disabled people were notlegally recognized as aminority or as citizens with fullrights. The Disability RightsMovement led to the enactment of anti-discrimination laws in the mostinfluential spheres of public life, such as 12For more information, visit thislink: http://www.medynet.com/usuarios/jraguilar/Manual%20de%20urgencias%2 0y%20Emergencias/traucra.pdf Acevedo26 employment, education andhousing. Two of the mostwidely-known pieces oflegislation aresection 504 of theRehabilitationAct of 1973 and 1990’sAmericans with Disabilities Act–ADA).13 19.Disability Models: Conceptual, analytical and reference frameworks conceivedof within the theoreticalbodyofDisability Studies in order to interpret the diversebeliefs, attitudes and approaches surroundingdisability. CharityDisabilityModelThe charity model, historicallyassociated with Christianity, promotes theidea that beneficial, altruistic works lead tothe salvation of thesoul and eternallifein Heaven (Torres Jiménez, 2011). Theideology that understandsdisability asa tragic characteristic ofthe human condition worthy ofbenevolence and protection is closely associated with this belief. This frameworksupposes, therefore, that disabledpeopleare fundamentally incapableanddependent, andtherefore propersubjects for the pityofsocietyand thestate (Castro-GironaMartínez, 2018). Morerecent historicalapproaches classify andtreat disabled persons as a social 13For more information, visit thislink: https://unchronicle.un.org/es/article/derribar-los-obst-culos-para-las- personas-con-discapacidad-y-hacer-realidad-la-ciudadan Acevedo27 and economic burden on thestate andthe collective. For example, the eugenicist policiesof NaziGermany were basedon thisconcept as the pretext for the extermination of multitudes ofpeople as “useless eaters”.14Current state policies that use benefitprojects to afford rehabilitation projects such as Telethons havecontributed to the exclusion of thedisabledpopulation and the systematic violationof their civil rights.15 Modelo Religioso o MoraldelaDiscapacidad(English: Religious/MoralModelofDisability): The religious modelunderstands disability as a materialmanifestation oftheimpurityofthesoul.Accordingto thismodel,bodymind differences are the result of apenitenceinflictedby a divine power to punish an earthly transgression involvingheresy,incest,lustor criminalacts.16Although this 14For more information, visit this link : https://www.asodispro.org/index.php/informacion/articulos-de- actualidad/88-el-exterminio-de-personas-con-discapacidad 15For more information, visit these links: http://historico.agenciadenoticias.unal.edu.co/AgenciaUN_/pdf/Documento_anexo_850.pdf, https://www.bbc.com/mundo/noticias/2014/11/141031_teleton_ cuestionamientos_nc, 16The term bodymind has been popularized through theacademic work of the American MargaretPrice, aspecialist in disability studies. Briefly, Price(2015)isinspired by literatureand thefeministtradition and first introduced this termin her Acevedo28 modelis in general obsolete in the United Statesandotheranglophonecountries,in other parts ofthe world thesebeliefs stillhavecurrency.In someparts ofLatin America, particularly ruralareas, the birth of a disabled child is seen as a punishmentfrom God on the parents, causing shame to the family andculturalstigma. It should be added that,in other cultures, disabilityhas also been considered a blessing due to its connection with the divine.17 Modelo Biomédico delaDiscapacidad(English:BiomedicalModelofDisability): Thisbiomedicalmodeldefinesdisability asanindividual“deficiency” forwhich only theperson “affected” isresponsible.According to this model, disabled persons essayThe BodymindProblem and the Possibilities of Painin order to challenge thesupposed distinction between bodily andmentalprocesses as theorizedby René Descartes in the seventeenth century. For Price, this separation is inaccurate and, as sheargues in her essay, physical and mental processes arefundamentallyinterlinked and operatedinterdependently. Price’sanalysis goes far beyondthis critical commentary to make thepoliticalcontext of disability more complex. However this analysisis beyond thescopeof this project. 17For more information, visit these links https://www.bbc.com/mundo/noticias-45717111https://nccc.georgetown.edu/documents/IntegracionOInclusionDeNinos1.pdfhttp://www.scielo.org.mx/scielo.php?script=sci_arttext&pid=S0188- 77422011000100011, http://ww2.filo.uba.ar/contenidos/carreras/antropo/catedras/hist_teoria_antropologica/sitio/sitio/pdf/Benedict.pdf, Acevedo29 shouldachievenormalization bymeans ofstandardizedandexperimental cures; rehabilitation, surgical, prosthetic, ‘therapeutic’, psychological, behavioral and ‘educational’procedures, and so on. ModeloSocialdela Discapacidad(English:SocialModelofDisability): The social model sees disability as a socialconstructoriginatingin the negative encounter between personswithbodymind impediments and their environment. This phenomenon is known as thedisability processand works viaaseries ofhistorical,institutionalandpoliticalrelationships and forces (Oliver and Barnes, 2012). Fromasocial perspective, disabilityis not located in thesupposeddeficit ofthe individualbutrather comes from the set ofarchitectural,socioeconomic, culturaland interpersonalbarriers that prevent disabled people from enjoying equalaccess to their civilrights and full participationinthecommunities they belong to.18 18The term “Social Perspective on Disability” was coined in the UnitedKingdom in the 1970s by a group of disabled activists,among them the well- known Vic Finkelstein. In the 1980s, the British academic Mike Oliverpopularized this perspectiveunder the name “Social Model”,as it continues to be known. For moreinformation, visit thislink: http://www.scielo.org.mx/pdf/bmdc/v46n138/v46n138a8.pdf Modelo Cultural de la Discapacidad (English: Cultural Model of Disability): This cultural model understands disability as an integrative, complex and multifaceted human experience that cannot be reduced to a dichotomous classification or semiotic reductionism separate from the historical and material context in which it is conceived (Mitchell y Snyder, 2006, 2015). According to this point of view, disability is a bodily and psycho-social experience, a cultural identity and a locus of political struggle. This model arose in the US in the 1990s in order to redirect the binary understanding of disability as an individual tragedy (Biomedical Model) or as an oppressive social category (Social Model). 20. Nada Sobre Nosotros Sin Nosotros (English: Nothing About Us Without Us): The political slogan popularized by disabled activists in the 1960s to communicate the claim to the rights of participation, leadership and decision-making in all processes that concern them and affect them (Charlton, 1998). Example: Government policies on disability, amendment and creation of new laws, affirmative action measures and equality between the legal, social and cultural environment and that of goods and services, among others. 21. Neurodiversidad (English: Neurodiversity): A concept referring to the neurological diversity of the human condition, the principle of which is the refutation of the strictly clinical classification of neuro-cognitive variations as inherently pathological; these include autism, attention deficit hyperactivity disorder, bipolar disorder, schizophrenia, obsessive compulsive disorder and more. 19 One of the first academic references to neurodiversity is attributed to the sociologist Judy Singer, who wrote that “The ‘Neurologically Different’ represent a new addition to the familiar political categories of class/gender/race and will augment the insights of the social model of disability.” (Singer, 1999, p. 4)20 This perspective gave rise to the Neurodiversity Movement, which is a political and cultural phenomenon that has been developing over the last two decades in various countries, and which is focused on the struggle for neurodiverse persons’ rights (ASAN, 2019; Walker 2014; McGuire 2016; Acevedo 2018; Acevedo, 2017). 19 Manual diagnóstico y estadístico de trastornos mentales (5ª ed., Texto rev.). 20 The original in English states: “The ‘neurologically different’ represent a new addition to the familiar political categories of class/gender/race and will augment the insights of the social model of disability” (Singer, 1999, p. 4). 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Reflexiones sobre religiosidad popular, el concepto de caridad en la espiritualidad laica, del amor a Dios al amor a los pobres, del mundo rural al humanismo. Cuadernos de estudios manchegos, 36, 154-184. Walker, N. (2014). Neurodiversity: Some Basic Terms and Definitions. [Neurodiversidad: Algunos términos básicos y definiciones]. [Blog entry]. Neurocosmopolitanism: Nick Walker’s Notes on Neurodiversity, Autism, and Cognitive Liberty. Victoria Maldonado, Jorge A. (2013). El Modelo Social de la Discapacidad: Una Cuestión de Derechos Humanos. Boletín Mexicano de Derecho Comparado, 138. Author: Sara M. Acevedo, PhD. Assistant Professor, Disability Studies Department of Educational Psychology Miami University This Vera Institute of Justice produced this document under award #2016-XV-GX-K015, awarded by the Office for Victims of Crime, Office of Justice Programs, U.S. Department of Justice. The opinions, findings, and conclusions or recommendations expressed in this document are those of the contributors and do not necessarily represent the oficial position or policies of the U.S. Department of Justice.